Living with Li-Fraumeni syndrome &amp; Von Hippel-Lindau disease

Living with Li-Fraumeni syndrome & Von Hippel-Lindau disease

Authors	C.R.M. Lammens
Supervisors	N.K. Aaronson
Cosupervisors	E.M.A. Bleiker S. Verhoef
Award date	05-11-2010
ISBN	9789075575316
Number of pages	175
Organisations	Faculty of Social and Behavioural Sciences (FMG) - Psychology Research Institute (PsyRes)
Document type	PhD thesis
Note	Research conducted at: Universiteit van Amsterdam
Language	English
Downloads	Thesis Front cover Title pages Contents Chapter 1: General introduction Chapter 2: Genetic testing in Li-Fraumeni syndrome: Uptake and psychosocial consequences Chapter 3: Regular surveillance for Li-Fraumeni syndrome: Advice, adherence and perceived benefits Chapter 4: Psychosocial impact of Von Hippel-Lindau disease: Levels and sources of distress Chapter 5: Compliance with periodic surveillance for Von Hippel-Lindau disease Chapter 6: Distress in partners of individuals diagnosed with or at high risk of developing tumors due to rare hereditary cancer syndromes Chapter 7: Attitude towards pre-implantation genetic diagnosis for hereditary cancer Chapter 8: Summary, discussion & conclusions Samenvatting (Dutch summary) Dankwoord (Acknowledgements in Dutch) Curriculum vitae
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