Feasibility and value of PatientViewpoint: a web system for patient-reported outcomes assessment in clinical practice

Background: The PatientViewpoint website collects patient-reported outcomes and links them with
the electronic health record to aid patient management. This pilot test evaluated PatientViewpoint’s
use, usefulness, and acceptability to patients and clinicians.
Methods: This was a single-arm prospective study that enrolled breast and prostate cancer patients
undergoing treatment and the clinicians who managed them. Patients completed patient-reported
outcomes every 2 weeks, and clinicians could access the results for patient visits. Scores that were poor relative to norms or substantially worse than the previous assessment were highlighted. After three on-study visits, we assessed patient and clinician perspectives on PatientViewpoint using close-ended and open-ended questions.
Results: Eleven out of 12 eligible clinicians (92%) and 52/76 eligible patients (68%) enrolled.
Patients completed a median of 71% of assigned questionnaires; clinicians reported using the information for 79% of patients, most commonly as a source of additional information (51%). At the median, score reports identified three potential issues, of which 1 was discussed during the visit. Patients reported the system was easy to use (92%), useful (70%), aided recall of symptoms/side effects (72%), helped them feel more in control of their care (60%), improved discussions with their provider (49%), and improved care quality (39%). Patients and clinicians desired more information on score interpretation and minor adjustments to site navigation.
Conclusions: These results support the feasibility and value of PatientViewpoint. An ongoing study is
using a continuous quality improvement approach to further refine PatientViewpoint. Future studies
will evaluate its impact on patient care and outcomes.