Vulnerable populations and genetic disorders: a socio-science approach to the application of genetic technology in China

Authors	S. Sui
Supervisors	A.P. Hardon
Cosupervisors	M. Sleeboom-Faulkner
Award date	28-09-2010
Number of pages	208
Organisations	Faculty of Social and Behavioural Sciences (FMG) - Amsterdam Institute for Social Science Research (AISSR)
Document type	PhD thesis
Note	Research conducted at: Universiteit van Amsterdam
Language	English
Downloads	Thesis Cover Title pages Table of contents Preface List of abbreviations Chapter one: Introduction Chapter two: Brief of research context Chapter three: The practice of genetic counselling: a comparative approach to genetic counselling in China Chapter four: Social, financial and ethical issues in commercial genetic testing Chapter five: Case study: prenatal genetic testing for thalassaemia and the reproduction of a ‘saviour sibling’ in China Chapter six: Case study: genetic testing for Duchenne muscular dystrophy and the vulnerability of families with Duchenne muscular dystrophy Chapter seven: Genetic service, intervention related to birth defects and population quality in China Chapter eight: Discussion Summary Samenvatting Bibliography Appendix
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