Familial hypercholesterolemia screening in the Netherlands: psychological and social consequences

Thesis

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Titlepage

Contents

Chapter 1 Introduction

Chapter 2 How disturbing is it to be approached for a genetic cascade screening programme for Familial Hypercholesterolemia? 'Psychological impact and screenees' views'

Chapter 3 'Quality of Life in a family-based genetic cascade screening programme on Familial Hypercholesterolemia: A longitudinal study among participants'

Chapter 4 'Genetic Testing for Familial Hypercholesterolemia: Fatalism and false reassurance'

Chapter 5 Risk Perception of Participants in a Family Based Genetic Screening Program on Familial Hypercholesterolemia

Chapter 6 Follow-up after a family-based genetic screening programme on Familial Hypercholesterolemia: Screening alone is not enough

Chapter 7 Getting insurance after genetic screening on familial hypercholesterolemia; the need to educate both insurers and the public to increase adherence to national guidelines in The Netherlands

Chapter 8 Summary and Discussion

Dankwoord

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